エピソード

  • Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
    2025/04/02

    In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and author of 'Unbearable Burden.'

    ---

    Krista shares the devastating experience of losing her daughter Elora to a cancerous brain tumor and the emotional journey that followed. Through vivid storytelling, Krista recounts moments from Elora's life, the sudden discovery of her illness, and the difficult decision to remove her from life support. The discussion also touches on Krista's subsequent pregnancy, the healing process, and the impact of Elora's memory on her family. This episode is a profound exploration of love, loss, and the enduring strength of a grieving mother.

    Learn more about EB and the voices in this episode:

    MEET Krista Isaacson

    READ 'Unbearable Burden'

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media: Podcast Production, High-Quality Editing, Content Coaching, and Show Promotion
    続きを読む 一部表示
    1 時間 6 分
  • Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity

    Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity
    2025/03/20

    In this episode of the Grace, Grief and Grit podcast, producer Dee Daniels and host Anne Davis welcome their special guest, Ariana Covarrubias.

    Ariana, a 25-year-old from Los Angeles living with Recessive Dystrophic Epidermolysis Bullosa (EB), shares her inspiring journey of resilience and authenticity. She discusses the challenges and personal growth stemming from her condition, the importance of mental health and vulnerability, and her passion for makeup and content creation.

    Ariana's story is a powerful testament to the strength of the human spirit and the impact of sharing one's true self. Listeners will find valuable insights into living with a rare condition, the evolution of resources and community support, and the significance of open conversations about difficult topics.

    Learn more about EB and the voices in this episode:

    MEET Ariana Covarrubias

    Reclaiming Beauty: Ariana Covarrubias and the ONE/SIZE Campaign

    SUBSCRIBE and MEET Ariana on YouTube

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    47 分
  • Season 3 Kickoff: Sippin' on Grace, Grit, and Community

    Season 3 Kickoff: Sippin' on Grace, Grit, and Community
    2025/03/13

    In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Anne Davis talk with Marianne Ganem Poppell, owner of Savannah Master Calendar and local business advocate, about the importance of connections and community.

    ---

    The conversation highlights Marianne's diverse roles in supporting local businesses and nonprofits, including her work with Savannah Master Calendar, Simply Savannah Marketing, and various local boards. They discuss the successful 'Sips at the Station' networking events at Ardsley Station, benefiting different nonprofits monthly.

    ---

    The episode also covers the upcoming events, including a Sips at the Station night on March 18th benefiting Heroes for Hallie Grace, and plans for further community engagement.

    Learn more about EB and the voices in this episode:

    Meet Marianne & Savannah Master Calendar

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    37 分
  • Finding Strength in Vulnerability: A Father's Journey Through Grief

    Finding Strength in Vulnerability: A Father's Journey Through Grief
    2025/02/06
    Welcome to the Grace, Grief and Grit Podcast Season 2 Finale. Join host Dee Daniels as she sits down for an emotional and inspiring conversation with Joe Davis, a father who has bravely shared his journey of losing a child. --- In this reflective episode, Joe opens up about the progress he's made since his last appearance, his struggles with vulnerability, dealing with triggers and grief, and the complexities of maintaining his faith. Joe also discusses the importance of being a vulnerable sounding board for others, the difficult balance of recalling certain memories as time goes on, and the hopeful advancements in EB research. --- This episode honors the strength and resilience it takes to navigate life's most profound losses while still finding moments of connection and joy.

    Thank you for listening! Please rate and review this podcast - and share the episode with others to help spread awareness of the continuous work to find a cure for EB.

    Learn more about EB and the voices in this episode:

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    1 時間 3 分
  • A Night of Stars and Strength: The LA "Rock4EB" Experience

    A Night of Stars and Strength: The LA "Rock4EB" Experience
    2025/01/30

    In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event.

    ---

    They discuss the significance of the event, designed to raise awareness and funds for Epidermolysis Bullosa (EB), and their personal experiences meeting notable celebrities like Brad Pitt and Courteney Cox.

    ---

    The Davises share stories of kindness and generosity from the attendees, the emotional connections made, and the impressive sum of over a million dollars raised for EB research. They reflect on the importance of unity among EB organizations and how events like these inspire further growth and collaboration.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Learn more about EBMRF

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    38 分
  • From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse

    From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse
    2025/01/09

    Welcome to the 'Grace, Grief and Grit' Podcast!

    In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Dennis shares his journey of writing inclusive children's books, focusing especially on his book 'Everyone Belongs' which discusses Epidermolysis Bullosa (EB).

    ---

    The conversation delves into Dennis's inspiration, the impact of his work, and the importance of acceptance and awareness in education. Dennis's background in special education and his personal experiences shape a compelling narrative around inclusivity and understanding. The episode also highlights advancements in EB treatments and the ongoing efforts to foster a supportive community for individuals with EB.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Find Dennis on Instagram

    Tap HERE to see all of Deniss Vanasse's books

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    38 分
  • Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday

    Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday
    2024/12/03

    In this special episode of the Grace Grief and Grit podcast, producer Dee Daniels hosts a full house featuring Jenny Brewster, Tyler Cobb, and Megan Mason, all board members of Heroes for Hallie Grace. The group shares personal stories about how they became involved with the nonprofit and discusses the crucial mission of supporting families affected by Epidermolysis Bullosa (EB).

    ---

    They highlight various ways the community can contribute, including becoming a Hallie's Hero through monthly donations, participating in the annual Butterfly Ball, and supporting the organization's fundraising efforts. The episode emphasizes the importance of Giving Tuesday and aims to inspire listeners to donate and assist in the fight against EB. Key actions include visiting the website HallieFlies.com, following Tiny Butterfly Warrior on social media, and spreading the word about the organization's impactful work.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    52 分
  • Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care

    Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care
    2024/11/21
    In this episode of the 'Grace, Grief and Grit' podcast, hosts Dee Daniels and Ann Davis welcome special guest Desiree Sparrow, an integrative health therapist, yoga instructor, and minister - who also works at a Children's Hospital in Philadelphia. --- Desiree shares her journey into integrative health, driven by her personal history with anxiety and trauma. The conversation delves into the importance of mindfulness, meditation, and yoga as tools for managing stress, medical conditions, and rare diseases. Desiree discusses practical techniques such as sensory anchoring and the RAIN method to help caregivers and patients regulate their nervous systems. She also emphasizes the significance of self-care and self-love, breaking down the misconceptions about yoga and mindfulness practices. --- This episode provides valuable insights and practical advice for anyone seeking to incorporate these practices into their daily lives to improve mental and physical well-being.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Tap HERE to connect with Desiree

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    52 分