The Grace, Grief and Grit Podcast

著者： Dee Daniels Media Podcast Network
無料で聴く

  • サマリー

  • Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
    Copyright 2023 All rights reserved.
    続きを読む 一部表示

あらすじ・解説

Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Copyright 2023 All rights reserved.
続きを読む 一部表示
エピソード
  • Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
    2025/04/02

    In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and author of 'Unbearable Burden.'

    ---

    Krista shares the devastating experience of losing her daughter Elora to a cancerous brain tumor and the emotional journey that followed. Through vivid storytelling, Krista recounts moments from Elora's life, the sudden discovery of her illness, and the difficult decision to remove her from life support. The discussion also touches on Krista's subsequent pregnancy, the healing process, and the impact of Elora's memory on her family. This episode is a profound exploration of love, loss, and the enduring strength of a grieving mother.

    Learn more about EB and the voices in this episode:

    MEET Krista Isaacson

    READ 'Unbearable Burden'

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media: Podcast Production, High-Quality Editing, Content Coaching, and Show Promotion
    続きを読む 一部表示
    1 時間 6 分
  • Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity

    Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity
    2025/03/20

    In this episode of the Grace, Grief and Grit podcast, producer Dee Daniels and host Anne Davis welcome their special guest, Ariana Covarrubias.

    Ariana, a 25-year-old from Los Angeles living with Recessive Dystrophic Epidermolysis Bullosa (EB), shares her inspiring journey of resilience and authenticity. She discusses the challenges and personal growth stemming from her condition, the importance of mental health and vulnerability, and her passion for makeup and content creation.

    Ariana's story is a powerful testament to the strength of the human spirit and the impact of sharing one's true self. Listeners will find valuable insights into living with a rare condition, the evolution of resources and community support, and the significance of open conversations about difficult topics.

    Learn more about EB and the voices in this episode:

    MEET Ariana Covarrubias

    Reclaiming Beauty: Ariana Covarrubias and the ONE/SIZE Campaign

    SUBSCRIBE and MEET Ariana on YouTube

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    47 分
  • Season 3 Kickoff: Sippin' on Grace, Grit, and Community

    Season 3 Kickoff: Sippin' on Grace, Grit, and Community
    2025/03/13

    In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Anne Davis talk with Marianne Ganem Poppell, owner of Savannah Master Calendar and local business advocate, about the importance of connections and community.

    ---

    The conversation highlights Marianne's diverse roles in supporting local businesses and nonprofits, including her work with Savannah Master Calendar, Simply Savannah Marketing, and various local boards. They discuss the successful 'Sips at the Station' networking events at Ardsley Station, benefiting different nonprofits monthly.

    ---

    The episode also covers the upcoming events, including a Sips at the Station night on March 18th benefiting Heroes for Hallie Grace, and plans for further community engagement.

    Learn more about EB and the voices in this episode:

    Meet Marianne & Savannah Master Calendar

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    続きを読む 一部表示
    37 分

The Grace, Grief and Grit Podcastに寄せられたリスナーの声

カスタマーレビュー：以下のタブを選択することで、他のサイトのレビューをご覧になれます。

Audible.co.jp

Amazon.co.jp
レビューはまだありません。