エピソード

  • 149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS
    2024/12/18

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and wellness organization.

    続きを読む 一部表示
    14 分
  • 148: An Interview With Huntington Disease Patient Activist Tanita Allen
    2024/12/16

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and its devastating impact on patients regardless of their racial or ethnic background.

    続きを読む 一部表示
    11 分
  • 147: An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati
    2024/12/03

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jean Elwing, MD, a professor of medicine and director of the Pulmonary Hypertension Program at Ohio's University of Cincinnati.

    続きを読む 一部表示
    14 分
  • 146: An Interview With Payel Gupta, MD, on the Importance of Social Media in Healthcare
    2024/11/27

    Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Payel Gupta, MD, on social media platforms such as TikTok, Facebook and YouTube, and their importance in reaching today's public—and fighting online misinformation.

    続きを読む 一部表示
    9 分
  • 145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association
    2024/11/22

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sandy Siegel, founder and president of the Siegel Rare Neuroimmune Association. Siegel started the charity 30 years ago with his wife, Pauline, after she was diagnosed with transverse myelitis. After Pauline's death in 2017, the organization expanded to include five other rare neuroimmune diseases including neuromyelitis optica spectrum disorder (NMOSD).

    続きを読む 一部表示
    16 分
  • 144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD
    2024/11/14

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Anastasia Vishnevetsky, MD, MPH, of Massachusetts General Hospital and Harvard Medical School. Dr. Vishnevetsky is heading a groundbreaking clinical trial of the cannabinoid spray nabiximols in treating the symptoms of NMOSD.

    続きを読む 一部表示
    17 分
  • 143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H
    2024/11/05

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ignacio Muñoz-Sanjuan, PhD, the president and founder of Factor-H—a Los Angeles-based nonprofit organization that works to alleviate extreme poverty among people with Huntington disease in Venezuela, Colombia, and Peru.

    続きを読む 一部表示
    16 分
  • 142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation
    2024/11/04

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Amy Case, MD, chief medical officer of the Pulmonary Fibrosis Foundation, about the importance of passing the bipartisan Supplemental Oxygen Access Reform (SOAR) Act, which is currently stalled in Congress.

    続きを読む 一部表示
    17 分