『Rare Care Podcast』のカバーアート

Rare Care Podcast

Rare Care Podcast

著者： Rare Care Podcast
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 Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved 科学 衛生・健康的な生活
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  • 182: An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'

    182: An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'
    2025/07/23

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Robert Steen of Oslo, Norway. Steen and his wife, Trude, are the parents of Mats Steen, who died of Duchenne muscular dystrophy (DMD) in 2014. An award-winning documentary, The Remarkable Life of Ibelin, is based on their son's story.
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    13 分
  • 181: An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment

    181: An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment
    2025/07/14

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Carolina Barnett-Tapia, MD PhD, an associate professor of neurology at the University of Toronto, about how myasthenia gravis is treated throughout the Western Hemisphere.
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    13 分
  • 180: An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award

    180: An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award
    2025/07/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews British scientist Angela Vincent, winner of the first-ever Lifetime Achievement Award from the Myasthenia Gravis Foundation of America.
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    13 分

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