On the tip of my tongue - talking about Aphasia

著者: Jonathan Hirons and Rob Edwards
  • サマリー


  • Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

    Jonathan's Experience with Aphasia


    1. Initial Incident:


    In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


    2. Medical Emergency:

    He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



    3. Impact on Daily Life:


    - Jonathan struggled with basic tasks such as speaking, reading, and writing.
    - He had memory issues, recalling only his postcode but not his full address or other personal information.
    - He faced challenges in understanding spoken language but could still sign his name.


    4. Support from Family:

    His wife, Ann, played a crucial role in his recovery:
    - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
    - This early intervention was vital for his rehabilitation.



    5. Progress Through Therapy:

    With the help of speech therapy, Jonathan made significant improvements:
    - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



    6. Advocacy and Awareness:


    - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
    - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



    Understanding Aphasia


    Aphasia is a language disorder that affects communication abilities, including:
    - Speaking: Difficulty in forming words or sentences.
    - Understanding: Challenges in comprehending spoken or written language.
    - Reading and Writing: Problems with reading text or writing coherently.



    Key Takeaways


    - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
    - Early intervention and support are crucial for recovery.
    - Awareness and education about aphasia can help reduce stigma and improve support for those affected.

    Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


    Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


    This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


    For permissions or inquiries, please contact hello@buffalolounge.co.uk

    © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
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あらすじ・解説


Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
エピソード
  • On the tip of my tongue Series 2 Episode 10 - Resilience and Recovery: Talia Lazarus' Inspiring Journey
    2025/03/19

    Send us a text

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief.

    00:00 Introduction to Talia Lazarus' Journey
    00:48 Understanding Aphasia
    01:49 The Accident and Immediate Aftermath
    03:59 The Road to Recovery
    05:58 Running a Half Marathon
    09:29 Starting the Podcast
    13:56 Career as a Presenter and Broadcaster
    21:44 Embracing Positivity and Overcoming Challenges
    31:43 Reflections and Future Plans
    36:56 Closing Remarks and Farewell

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    39 分
  • On the tip of my tongue S2 E9 - Tamsin Keyes on Brain Injury and Work
    2025/03/11

    Send us a text

    Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work

    In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, including cognitive challenges and workplace accommodations. The discussion highlights the hidden nature of brain injuries and the importance of awareness, support, and legal rights under the Equality Act. Tamsin also shares resources and services provided by HEADWAY, including their helpline, local support groups, and vocational rehabilitation options. The episode aims to raise awareness and offer practical advice for individuals affected by brain injuries and their families.

    00:00 Introduction to HEADWAY and Brain Injury
    00:28 Understanding Brain Injuries
    02:50 Challenges of Returning to Work
    08:14 Support Systems for Employment
    14:37 HEADWAY's Services and Support
    23:27 Conclusion and Final Thoughts

    www.headway.org.uk

    www.acas.org.uk

    www.gov.uk/government/collections/disability-confident-campaign

    www.jobcentreguide.co.uk/about-disability-employment-advisors

    www.gov.uk/guidance/equality-act-2010-guidance

    www.vrassociationuk.com/resources-for-individuals

    www.ncvo.org.uk/get-involved/volunteering/volunteering-opportunities


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    28 分
  • On the tip of my tongue Series 2 Episode 8 - Graham Hall: Bring on the nouns
    2025/02/23

    Send us a text

    Overcoming Aphasia: The Journey of Graham Hall

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral percussionist who suffered a stroke a decade ago. Graham shares his experiences dealing with aphasia, its impact on his career, and the challenges of regaining his speech and musical abilities. Despite losing the joy in playing music, Graham found fulfilment in music arrangement and preparation. The discussion touches on brain injury recovery, neuroplasticity, and the importance of continuous practice. Graham's story aims to raise awareness about aphasia and encourages support for individuals with brain injuries.

    00:00 Introduction and Personal Story
    00:34 Welcome to the Podcast
    00:52 Understanding Aphasia
    01:45 Graham Hall's Stroke Experience
    03:20 Challenges in Music Post-Stroke
    06:00 Reconnecting with Music
    10:07 Living with Aphasia
    14:31 Raising Awareness and Support
    27:58 The Role of Family and Friends
    29:55 Creative Coping Mechanisms
    33:06 Conclusion and Resources

    Before my stroke (2014) I used parody to comment/mock the situation in my musical life.
    So I've been using that to describe my new life with aphasia. The lyrics are "contrafactum" (the substitution of text for another without change to the music) and comment on how I cope with brain damage and aphasia. The irony is that despite having musical anhedonia I'm still a musician!

    https://grahamhall.bandcamp.com

    Amongst other books , Graham recommends Musicophilia

    [ https://www.oliversacks.com/oliver-sacks-books/musicophilia-oliver-sacks/]

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    続きを読む 一部表示
    34 分

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