This week, Sandy and Naomi speak with Advanced Exercise Physiologist and Co-Chair International Clinical Exercise Physiology Network, Luke Snabaitis, about exercise as medicine.....

Topics discussed:

1. Benefits of movement
2. Guidelines for exercise
3. Movement for pain management
4. Maintaining muscle and connective tissue

Links mentioned in this episode:

• www.xlhaustralia.com
• www.xlhnetwork.org

This podcast is hosted by ZenCast.fm

This week, Naomi and Sandy speak with Suzanne, Royce, Angela, Georgia and Eli--three generations, each with unique experiences and perspectives on life with XLH—and life as part of an XLH family!

Topics discussed:

1. Growing up with XLH
2. Parenting a child with XLH
3. A child's perspective

Links mentioned in this episode: www.xlhaustralia.com

This podcast is hosted by ZenCast.fm

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

Topics discussed:

1. The journey to diagnosis
2. Parenting a child with a rare disease
3. Navigating healthcare and advocacy

Links mentioned in this episode: www.xlhaustralia.com

This podcast is hosted by ZenCast.fm

This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.

Topics discussed:

1. XLH journey as a spontaneous case
2. Living healthy
3. XLH India

Links mentioned in this episode:

• http://xlhaustralia.com
• http://xlhindia.org

This podcast is hosted by ZenCast.fm