Preparing for breast cancer surgery was all-consuming once I found out I had an invasive ductal carcinoma in my left breast. I never stopped to think about what might be part of recovery from the nipple-sparing and skin-sparing mastectomy until I was in the recovery room. Then I learned the skin on my left breast was potentially going to be at risk for impaired healing or tissue death. My plastic surgeon had a solution for mitigating this at-risk situation.

In this episode, I am sharing how I spent the hours and days after the mastectomy, leading up to hyperbaric oxygen therapy. This is a series that goes through the process of this (aggressive) wound care approach to “save my flap”. Spoiler alert: The skin healed mostly beautifully and and quickly, but not without a few side-effects I was not expecting.

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I had a choice in terms of what would be the best option to remove the invasive ductal carcinoma that I had just learned was in my left breast. I had recently had a biopsy in a different part of my left breast. Given that there were 2 places that had the potential or were actually problematic, I opted for a mastectomy. I thought that if there were 2 problem areas, there were likely to be more problem areas in that breast. I did not want to take any chances on having more cancer. I also wanted to avoid needing radiation. By removing my left breast via a mastectomy, I was not likely to need radiation to the breast or chest. In addition to being convinced that there was a storm brewing in my left breast and even possibly other places that could be cancer (there were not), I wanted to avoid any radiation effects on the heart and lung tissues, which were situated nearby the left breast.

I share my personal assessment of the situation and why I chose to have a mastectomy in this episode. I also talk about my experience of looking back and wondering if the mastectomy was the right decision, nearly 2 years later and given the more in-deptch screening that I know have, knowing my risk for developing breast cancer. .

The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains opinions of the host.

If you’d like to be the first to receive updates and exclusive content from the upcoming Breast Cancer Lifenewsletter, please email me at connect@breastcancerlife.org . I’d love to have you on the list!

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In 2023, when I had my cancer surgery, there was a non-cancerous spot on the right that was recommended for a biopsy. At the time, I did not ask any questions about why take out =NORMAL! breast tissue? Hindsight is 2020. On screening MRIs for the right breast in 2024, the same “non-mass enhancement” that was seen in 2023 (before any breast surgery) keeps showing up in the imaging report.

The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains the opinions of the host.

If you’d like to be the first to receive updates and exclusive content from the upcoming Breast Cancer Life newsletter, please email me at connect@breastcancerlife.org . I’d love to have you on the list!

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My swimming workout is my ultimate treat each week. I consider it a great escape because it takes me to an alternate place. In the water, my body is horizontal. I glide through the water and work all the muscles in my body, from head to toe. I am on a different plane and weightless in the water. This roughly 45 minute experience restores my mental and physical energy. It helps me to feel better in my skin. When I finish, I take a long (and usually warm) shower. I head right home to finish drying my hair and am ready to start my day.

I walk out of the locker room feeling both energized and relaxed. I could conquer anything in the day or I could take a nap (which I never do). I know that I crave the effects swimming has on my body.

This swimming experience is a routine and a ritual. I have become so in need of the feeling that this moderate-intensity swim workout gives me that I cannot go without it. I have really come to rely on this swimming ritual to eliminate the feeling of stress that has lingered in me for a lot of days over the past 2 years, since my breast cancer journey started. I know that the best way to get rid of the butterflies fluttering around in my stomach at 2 or 3 am is to swim them away.

Without any doubt, there is a much physiological benefit from time in the water, too. Feeling the butterflies in my stomach signals the stress I am experiencing. Much of this is related to the fear that breast cancer creates in me. That stress cannot live in me. I must release it. I have found that the pool is the best way, although not the only exercise I use to lower or eliminate my stress.

I realize that this past year, swimming has become so important. There have been times when I was not able to swim. I did survive without the water, but now I know what is best for my mind and body. I am more in tune to my mind and body and I am more fearful of what will happen if I do not take care of it. Breast cancer is the biggest element of why I get to the pool each week. I did not always feel the effects of the water in such a deep way, although swimming has been part of my exercise for many years, even if more or less frequently than my current routine.

The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains opinions of the host.

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I am at a point now where I have follow-up breast imaging. I suspect everything will be normal. I considered rescheduling the upcoming appointments related to my breast cancer until after the holiday season.

A few common thoughts that I bring up in this episode:

• Survivorship can be difficult, even when things are going well

• Everything has the potential to be something in the body after a history of breast cancer

• Testing (a breast MRI) in December has the potential to distract me from what is most important at this time of the year

• Going to doctor appointments is not how I want to spend my December

• Strategies to manage stress are essential

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The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains opinions of the host.

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In this episode, I talk about being compelled to take on projects that are important to me. This includes a lot of “putting life in order” tasks that seem to be priorities for me now. The year of 2023 was consumed by my health care experience that was centered on the breast cancer screening, diagnosis, recovery and the start of survivorship. Finally, after a year of learning to live as a survivor, I am feeling that I have space in my life to take on extra projects like creating photo albums to tell the story of my family life. Breast cancer brings up a lot of emotions and makes the future unclear.

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The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains the opinions of the host.

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I have talked often about living in the grey zone of survivorship. I know I am not alone in saying that this stage of breast cancer life is harder than the beginning when I was having additional testing and preparing for surgery. I had never discussed what it means to be a survivor with anyone when I was first diagnosed. No one sat down and talked about survivorship with me in the beginning, either. The focus was on getting all the information to formulate a treatment plan.

Then it hit me like a brick wall after I was at a point when all the surgical recovery was essentially complete. I remember the moment at about 3 months after surgery when I realized that is when it gets more difficult. I am facing my future, which is filled with uncertainty. That is nothing new but there is an added consideration to add to my “future life”: Breast cancer. I do not know when or if the breast cancer will return.

For my listeners, I want to share experiences that you might relate to. An episode of the Breast Cancer Conversations podcast that I listened to over the weekend really resonated with what I have been going through for the past 15 months. The Breast Cancer Conversations podcast has had a few episodes that made a huge impact on me in the earliest months of my survivorship. When I listened to the episode #192 (referenced below), with guest David P. Bullis PhD, I knew immediately I had to share it with my listeners.

In the episode, Dr Bullis talks about his work and experience, which comprises the content of his book, How to Get a Grip: Coping Strategies for Complicated Times. Dr Bullis says that the biggest enemy in cancer treatment is uncertainty. He really nailed it! Facing a future where the cancer might change my life goals or interfere with how I thought I would spend the rest of my life or my future years way down the road…… Cancer comes into my vision. I cannot put aside the “what ifs” of a breast cancer history (it is permanently part of my story/my life).

In the episode, Dr Bullis also touches on control and decision-making, pointing out that we are using the best of our abilities at the time when we are making decisions.

Once I read the book, I will share more. In the meantime, I encourage you to listen to the Breast Cancer Conversations episode and read Dr Bullis’s book.

How to Get a Grip: Coping Strategies for Complicated Times by David P. Bullis, PhD

https://www.breastcancerconversations.org/podcast Episode #192 (released March 26, 2023)

I listened on Apple Podcasts. This link is to the podcast website.

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The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains opinions of the host.

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I recently met someone who said that they learned about my podcast from my LinkedIn profile. We were meeting regarding our work. She shared that she also had a recent diagnosis of breast cancer - at the same time that I did. She was new to survivorship just like me.

It has been just over a year since the heaviness of survivorship really hit me. It forced me to leave my job because I happened to be working specifically with breast cancer clinical trials. I had to get outside of my head and find a way to get back to living life and not be obsessed with breast cancer and my fear of it limiting my life.

So my energy to keep sharing my story and providing anecdotes that help me to get on with my life has been boosted after that interaction last week with someone who knows what it feels like to be on this journey.

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The content of this podcast is not intended to substitute professional medical advice, diagnosis, or treatment. Always consult a healthcare professional regarding your healthcare questions and concerns. This podcast contains opinions of the host.

LET'S CONNECT:

connect@breastcancerlife.org