In this episode, Steven breaks down a tumultuous week in public health and healthcare policy — from a growing trade war with China and its potential impact on medical imports, to the elimination of a vital pain research office at the National Institutes of Health (NIH). He also unpacks the mixed messaging from HHS Secretary RFK Jr. on vaccines, including unchecked claims about measles treatments.

Tune in for a timely and important public health update.

Among the highlights in this episode:

00:57: Steven unpacks the wave of new tariffs, and how they might impact healthcare costs and access

04:14: Steven explains the implications for patients if pharmaceutical products and medical devices face future tariffs

06:45: Steven discusses the shutdown of the NIH’s Office of Pain Policy and Planning, and how it could stall research and support for people living with chronic pain

08:23: Steven addresses RFK Jr.'s shifting statements on vaccines in response to a second measles-related death in Texas

09:12: Steven raises concern over RFK Jr.’s promotion of unproven treatments for measles, including cod liver oil and vitamin A

10:25: Steven explains why these alternative therapies can be harmful and misleading, especially when used instead of scientifically validated treatments

11:42: Steven gives a shout-out to GHLF’s Healthcare Matters podcast episode featuring former FDA Commissioner Peter Pitts, exploring deeper implications of agency cuts. You can listen to the full episode here: https://ghlf.org/healthcarematters/#episode55

12:10: Steven announces the launch of the new Lupus Help Center at www.lupushelpcenter.org — a go-to resource for people living with lupus

Contact Our Host

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

It’s been a whirlwind week in public health. In this episode, host Steven Newmark breaks down a string of major developments coming out of the U.S. Department of Health and Human Services (HHS). From mass layoffs across HHS, including at the FDA, to the resignation of the country’s top vaccine regulator, these changes raise serious concerns—especially amid a rising measles outbreak.

Tune in to hear what this means for patients, public health efforts, and the fight against vaccine hesitancy.

Among the highlights in this episode:

00:50: Steven Newmark, Chief of Policy at GHLF, discusses HHS Secretary Robert F. Kennedy Jr.’s announcement of 10,000 staff layoffs, with the Food and Drug Administration (FDA) and Centers for Disease Control and Prevention (CDC) being the most impacted

01:31: Steven reflects on RFK Jr.'s earlier warning to FDA workers to "pack their bags" and discusses concerns about maintaining service levels with a 25% workforce cut

02:08: Quoting Robert Califf, Steven shares the demoralization felt by former and current HHS staff, calling out the treatment of hardworking public health employees

02:38: Steven shares concerns from Chiquita Brooks-LaSure, former Centers for Medicare & Medicaid Services (CMS) head, particularly around the likely impact of layoffs on already underfunded nursing home inspections

03:20: Steven reports the forced resignation of Dr. Peter Marks, the FDA’s top vaccine regulator, and the alarming response from the public health community

04:06: Steven details Dr. Marks’ warnings about leadership skepticism toward vaccines, especially in light of the growing measles outbreak

04:34: Steven gives an update on the measles outbreak in Texas and other states, citing more than 500 cases nationwide and highlighting RFK Jr.'s unscientific treatment suggestions like vitamin A and cod liver oil

05:16: Steven discusses how HHS cuts are hampering efforts to track infectious diseases and fund vaccine research, even as the outbreak fuels a shift toward pro-vaccine sentiment in affected areas

05:49: Steven urges listeners to get vaccinated and ensure those around them—especially children—are protected with the Measles, Mumps, and Rubella (MMR) vaccine

Contact Our Host

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode, our hosts break down the latest health care news, from the cancellation of a long-running diabetes study to the rising number of measles cases across the U.S. They also discuss the nomination of Dr. Oz to lead the Centers for Medicare and Medicaid Services (CMS), potential Medicaid cuts tied to tax policy changes, and major layoffs at a key health research agency.

Tune in to hear what these developments mean for patients and how they could impact access to care.

Among the highlights in this episode:

00:35: Steven Newmark, Chief of Policy at GHLF, highlights the Trump administration’s decision to cancel funding for a 30-year diabetes study

01:09: Zoe Rothblatt, Director of Community Outreach at GHLF emphasizes the importance of long-term studies for chronic disease research

02:10: Steven shifts the conversation to the rising number of measles cases, noting over 300 reported cases so far this year

02:36: Zoe explains why the measles outbreaks are concerning, especially for immunocompromised individuals

03:27: Zoe advises those with chronic illness to monitor outbreaks and adjust travel plans accordingly

03:41: Steven discusses former CDC Director Dr. Rochelle Walensky’s call for a third MMR vaccine dose for certain infants aged 6-11 months traveling to high-risk areas

04:46: Steven transitions to discussing Dr. Oz’s nomination to lead CMS and his past support for Medicare Advantage plans and points out Dr. Oz’s openness to reducing Medicaid spending, which could limit access for low-income and disabled individuals

05:48: Steven discusses how Republican efforts to extend Trump-era tax cuts may lead to Medicaid budget cuts

07:41: Zoe reflects on how much uncertainty exists in health policy, emphasizing the need for advocacy

Join GHLF’s 50 State Network, share your story, and get involved in advocacy to make a difference, email us at advocacy@ghlf.org

08:16: Steven shares news about potential layoffs at AHRQ, a lesser-known but critical health research agency and highlights AHRQ’s research on ultra-processed foods, childhood obesity, and diabetes-related hospitalizations

09:59: Zoe expresses concern that cutting such research undermines broader public health goals

10:11: Steven ends on a positive note, reporting that flu rates are dropping and COVID cases remain low in the U.S.

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode our hosts sit down with Tennessee State Senator Shane Reeves, a pharmacist-turned-legislator, to discuss his journey from pharmacy to public office. Senator Reeves shares his firsthand insights into the obstacles pharmacists face in patient care and policy, the role of pharmacy benefit managers (PBMs), and why transparency in health care pricing is crucial for patients. He also breaks down his legislative efforts to support independent pharmacies, improve medication adherence, and advocate for patient-first policies.

Tune in for an engaging conversation on the intersection of health care and policy, and why patients should build strong relationships with their pharmacists.

Among the highlights in this episode:

01:14: Sen. Reeves shares how his father’s role as both a pharmacist and public servant inspired his own path into politics

02:07: Sen. Reeves discusses the unique presence of multiple pharmacists in the Tennessee State Senate and how it benefits health care legislation

03:10: Sen. Reeves explains the role of pharmacy benefit managers (PBMs) in the health care system and how their increasing control has negatively impacted pharmacists and patients

04:39: Steven and Sen. Reeves discuss how PBMs evolved from cost controllers to powerful entities influencing patient care decisions

05:34: Sen. Reeves describes his legislative efforts to prevent “patient steering,” ensuring prescriptions are filled at the provider or patient’s preferred pharmacy

07:18: Sen. Reeves emphasizes the lack of price transparency in health care and provides an example from Singapore, explaining how full health care price transparency allows patients to know the costs of medical services upfront in contrast with the U.S. where prices are often hidden until after services are rendered

08:06: Sen. Reeves discusses the impact of PBMs on independent pharmacies and the struggle to keep small, community-based pharmacies in business

09:12: Steven and Sen. Reeves discuss the real-life consequences of PBMs interfering in patient care, including delayed access to life-saving medications

09:51: Sen. Reeves shares his advocacy for better medication adherence and the role of pharmacists in helping patients stay on track

12:15: Zoe and Steven reflect on the discussion, emphasizing the importance of having legislators with health care expertise in office

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of The Health Advocates, our hosts welcome Brindley Brooks, founder and executive director of HS Connect. Brindley shares her powerful journey living with Hidradenitis Suppurativa (HS) since age 10, including her misdiagnosis, the stigma surrounding HS, and how her life-changing decision to undergo surgery led her to become a passionate patient advocate. The conversation highlights the critical role of advocacy in supporting the HS community, including initiatives like GHLF's HS Patient Guide and the impactful work of HS Connect in raising awareness, providing education, and fostering a supportive community for those living with HS.

Among the highlights in this episode:

01:23: Brindley introduces herself and shares HS Connect’s mission of providing factual education and promoting shared decision-making

01:53: Brindley recounts her early experience with HS, initial misdiagnosis, and the stigma that discouraged her from seeking care for over a decade

03:57: Brindley describes the pivotal decision to undergo surgery, the transformative impact it had on her life, and finding empowerment through that choice

06:12: Brindley discusses the founding of HS Connect, its rapid growth, and the organization’s focus on correcting misconceptions and reducing stigma in the HS community

08:18: Steven Newmark, Chief of Policy at GHLF, talks about GHLF’s HS Patient Guide and highlights Brindley’s role in incorporating patient perspectives into the resource

08:36: Brindley shares why patient-involved educational resources are essential for HS patients and her experience collaborating with GHLF

09:37: Brindley explains the different levels of advocacy, from sharing personal stories to influencing federal policies, including a campaign for insurance coverage of laser hair removal for HS patients

10:46: Steven emphasizes the importance of collaboration between organizations like GHLF and HS Connect in advancing advocacy

11:26: Brindley outlines HS Connect’s 2025 priorities, including mental health initiatives like "Healing Space for HS" and broader advocacy campaigns

12:58: Brindley offers words of encouragement, urging those with HS to seek community support and to know they are not alone

To learn more about HS and access GHLF’s HS Patient Guide, visit: https://ghlf.org/hspatientguide/

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In honor of Black History Month, The Health Advocates welcome Dr. Georges Benjamin, Executive Director of the American Public Health Association (APHA). Dr. Benjamin shares his journey from emergency medicine to public health leadership, offering insights on health equity, community-based advocacy, and the ongoing challenges in public health. He discusses critical topics such as health care access and the importance of listening to communities to drive meaningful change.

Tune in for an insightful conversation about advancing public health for all.

Among the highlights in this episode:

02:08: Dr. Benjamin shares how his initial interest in molecular genetic research shifted toward emergency medicine and public health leadership

03:49: Dr. Benjamin discusses key challenges he has faced, from the HIV/AIDS epidemic to natural disasters and bioterrorism events

05:52: Dr. Benjamin highlights APHA’s focus on health insurance access, food insecurity, climate change, gun violence, reproductive rights, and vaccine advocacy

06:37: Zoe Rothblatt, Director of Community Outreach at GHLF, brings up the challenge of proving public health successes, noting that prevention often goes unnoticed

07:21: Dr. Benjamin explains how public health efforts prevent crises, using measles and vaccine hesitancy as examples

08:39: Zoe asks about the role of partnerships in public health, and Dr. Benjamin emphasizes collaboration as a key strategy

09:50: Dr. Benjamin shares personal experiences and the importance of diverse voices in decision-making

13:02: Zoe asks how public health programs should be evaluated, and Dr. Benjamin explains the importance of listening to communities before implementing solutions

14:45: Dr. Benjamin provides an example of how addressing social determinants of health, like safe neighborhoods, can make healthier choices more accessible

15:27: Dr. Benjamin shares his key takeaway: public health professionals must listen more than they talk

15:49 – Zoe and Steven Newmark, Chief of Policy at GHLF, reflect on Dr. Benjamin’s insights, emphasizing the importance of community engagement in public health

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this timely episode, The Health Advocates break down the recent Senate hearings for HHS nominee Robert Kennedy Jr.. They discuss the critical role of the HHS Secretary in shaping public health policy and managing key agencies like the FDA and CDC. The hearings exposed Kennedy’s controversial views on vaccines, concerns over scientific integrity, and notable missteps in understanding health policies.

Tune in to hear what this means for patients and what happens next in the confirmation process.

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode, our hosts break down the executive actions taken during the early days of President Trump's second administration. They discuss the wave of executive orders impacting health care, including changes to the Affordable Care Act (ACA), prescription drug pricing, and federal health agency communications. Our hosts also explore what these changes mean for patients and what to expect in the coming months.

Among the highlights in this episode:

00:49: Steven Newmark, Chief of Policy at GHLF, notes that 23 executive orders have been signed so far, with a significant number impacting health care policy

01:27: Zoe Rothblatt, Director of Community Outreach at GHLF, explains the difference between executive orders, general statements, and legislation, clarifying what executive orders can and cannot do in shaping policy

02:08: Steven defines executive orders, explaining that they carry the force of law but cannot override congressional legislation or violate the Constitution

03:54: Zoe discusses the rescinding of a Biden-era executive order aimed at lowering prescription drug costs, highlighting the uncertainty about future drug pricing policies

05:10: Zoe reassures that key provisions of the Inflation Reduction Act (IRA), such as the $35 insulin cap and Medicare drug price negotiations, remain in effect

06:20: Steven explains how Trump’s reversal of Biden-era Affordable Care Act (ACA)-related executive orders removes provisions that expanded eligibility, particularly for families

07:09: Zoe highlights that expanded ACA enrollment under Biden led to 24 million sign-ups, and that reversing these policies could impact future enrollment

08:38: Steven discusses the administration’s directive to pause external communications from federal health agencies, including the CDC, FDA, and NIH

09:06: Zoe explains that such pauses aren’t unprecedented during government transitions

10:21: Steven questions the rationale behind pausing all health-related communications rather than maintaining continuity while reassessing policies

11:47: Steven addresses the removal of federal guidance on diversity in clinical trials, which could impact efforts to ensure equitable research representation

12:41: Zoe highlights how removing diversity-focused resources could discourage participation from historically marginalized groups in medical research

13:18: Steven explains the importance of diversity in clinical trials beyond symbolism, emphasizing its role in ensuring effective treatments for all populations

14:04: Zoe notes that additional resources, such as Spanish-language content and LGBTQ+ health materials, have also been removed from federal websites

14:27: Steven signals that there are more major health care policy changes ahead, including the U.S. withdrawing from the World Health Organization

15:11: Zoe encourages listeners to get involved in advocacy efforts through GHLF’s 50-State Network

Join GHLF’s 50 State Network, share your story, and get involved in advocacy to make a difference, email us at advocacy@ghlf.org

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.