Parkinson's Disease Story Exchange

著者: The PD Story Exchange Team
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  • The Parkinson's Disease Story Exchange uplifts unheard voices in and outside of the Parkinson's community. Listen to real conversations where filters are thrown out the door. All so that you can know the nitty, gritty, and the in-between about this disease.
    The PD Story Exchange Team
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The Parkinson's Disease Story Exchange uplifts unheard voices in and outside of the Parkinson's community. Listen to real conversations where filters are thrown out the door. All so that you can know the nitty, gritty, and the in-between about this disease.
The PD Story Exchange Team
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  • What to Know | with Dr. Paulina Gonzalez-Latapi, Dr. Daniel G. Di Luca, Dr. Ece Bayram, and Dr. Johanna O'Day
    2025/02/17

    There's several other hundred blogs, videos, and podcasts that hosts researchers and doctors for their own significant panel discussions. Still, there lacks a diversity in voices, experiences, and backgrounds within these panels. I wanted to challenge that.


    A few years back, I met with world-renowned clinicians across North America and asked them: What should patients know about most?


    From their diverse backgrounds, international experiences, and distinctive voices, viewers and listeners can finally feel seen and hear from physicians/researchers that better reflect them.

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    Tune in to learn more about what you need to know about your Parkinson's journey. Read more for information about the our panelists below!

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    Dr. Paulina Gonzalez-Latapi, MD

    A leading advocate for the Latino community, Dr. Gonzalez-Latapi from the Parkinson’s Disease and Movement Disorders Center at Northwestern Memorial Hospital reminds viewers how they can stay connected to and take charge of their medical care.

    https://www.feinberg.northwestern.edu/faculty-profiles/az/profile.html?xid=50712

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    Dr. Daniel G. Di Luca , MD, MSc

    Heavily engrossed in Parkinson's research, Dr. Di Luca is now an Assistant Professor of Neurology and Movement Disorders at Washington University in St. Louis. He leads the conversation on what he recalls as patients remembering "the first person to tell them about their PD diagnosis" and sympathizes with their plight.

    https://physicians.wustl.edu/people/daniel-g-di-luca-md-msc/

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    Dr. Ece Bayram, MD, PhD

    Candid and conversational, Dr. Bayram, originally born and raised in Turkey, speaks on her time conducting clinical research trials with PD patients and what she's learned from respecting patient's own comfort zones along the way. Now a Assistant Professor of Neurology at University of Colorado's Alzheimer's and Cognition Center, Dr. Bayram remains hopeful that viewers will takeaway the clinician's perspective from this panel.

    https://medschool.cuanschutz.edu/alzheimer/about/directory/faculty/ece-bayram

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    Dr. Johanna O'Day, PhD

    Focused on biomechanics and how they can help relieve Parkinson's patients in the very near future, Dr. O'Day of Stanford's Wu Tsai Human Performance Alliance, elaborates on her past work and how she sees bioengineering becoming a larger pillar in future PD research.

    https://profiles.stanford.edu/johanna-oday

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    Special thanks to Dr. Paulina Gonzalez-Latapi, Dr. Daniel G. Di Luca, Dr. Ece Bayram, and Dr. Johanna O'Day for their insights and their marvelous contributions to the Parkinsonism and Movement Disorder field. Thank you!

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    31 分
  • Parkinson's Pill Bottle | with Brian Alldridge
    2022/07/10

    Brian Alldridge is a renowned reality TV videographer. Brian designed a pill bottle after watching a Parkinson's patients' TikTok where he struggled to grab one of the medications in the container. Brian decided to fix that.


    The invention has 3 parts and an easy-to-use function for those with any movement impairment. Alldridge explains the motivation behind it, how to use it, and its impact with me. With a little CAD, a ton of searching, and a huge support from the internet, the TremorSafe bottle flourished. Tune in to hear more about the bottle and where you can find it.

    Ideas are a dime a dozen but this one ended up being a major dime.


    For more information about the TremorSafe pill bottle: https://www.tremorsafe.com/

    Special thanks to Brian for the wonderful conversation.

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    30 分
  • F**K PARKINSONS | with Steve Goldstein
    2022/07/06

    Journalistic instinct and versed writer, New York native and Bethesda resident, Steve Goldstein retraces his story in this 2019 episode. He shares what it means to fight Parkinson's head-on until it gives up. A strategy he uses? Boxing. Listen more to find out how Steve punches his pain away and what he does to stay motivated on and off the ring.


    Special thanks to Steve for being one of my favorite interviews to date.

    Read more on Steve's article regarding Title Boxing Classes here: https://bethesdamagazine.com/bethesda-magazine/january-february-2019/glove-up-parkinsons/

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    19 分

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