In response to several requests from listeners, this episode is all about the complexities of giving medication to our neurodivergent kids.

Mark speaks to the tremendous Danielle Jata-Hall, who is an author, award-winning blogger and a disability campaigner. She has three children (13, 11 and 8 - all diagnosed Autistic with a PDA profile, as well as a blend of ADHD, Anxiety and potential bipolar disorder).

Mark and Danielle discuss the medication journeys they've been on with their own kids, from overcoming their initial misgivings and dealing with the judgement of others, to the administrative nightmare of trying to get medication prescribed by medical professionals.

They compare different prescription pathways and share their experiences of the difficult process of titration - not to mention the rigamarole of actually getting their kids to take the medication we've fought so hard to get for them.

LINKS TO STUFF WE MENTION IN THIS EPISODE:

"The Journey Into S.E.N.D Fatherhood" book - https://amzn.eu/d/0qwN0il

Danielle Jata-Hall blog - https://pdaparenting.com/

Newbold Hope - https://www.newboldhope.com/

FII (Fabricated or Induced Illness) - https://www.nhs.uk/mental-health/conditions/fabricated-or-induced-illness/overview/

"The Parent's Guide to ADHD Medicines" book - https://amzn.eu/d/i2e73JM

Shared Care - https://www.england.nhs.uk/medicines-2/regional-medicines-optimisation-committees-advice/shared-care-protocols/

"I'm Not Upside Down, I'm Downside Up" book - https://amzn.eu/d/avsMxy2

"Black Rainbow" book - https://amzn.eu/d/he1Nd8K

"Steph's Two Girls" blog with tips on getting your child to take medication - https://www.stephstwogirls.co.uk/2020/01/top-tips-when-your-child-wont-take.html

"A boy less ordinary" blog - https://aboylessordinary.com/

CONTACT US

If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

Instagram: www.instagram.com/neuroshambles

TikTok: www.tiktok.com/@neuroshamblespod

Facebook: www.facebook.com/Neuroshambles

Threads: www.threads.net/@neuroshambles CREDITS

The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

What was it like to raise an autistic child 30 years ago? Mark has a fascinating chat with Stephanie - his wonderful neighbour from over the road, who has a 31 year old son (diagnosed autistic with moderate learning difficulties, OCD and anxiety).

They discuss how parents of autistic children were able to navigate the process of understanding how best to raise their kids, without access to the internet, social media or the breadth of information we have available now?

This is an enlightening and surprisingly uplifting episode, which shines a light on just how far society has come in a relatively short space of time, when it comes to understanding, supporting and championing our neurodivergent kids.

LINKS TO STUFF WE MENTION IN THIS EPISODE:

Disneyland, Paris - https://www.disneylandparis.com/en-gb/

Echolalia - https://en.wikipedia.org/wiki/Echolalia

The Very Hungry Caterpillar, Eric Carle - https://amzn.eu/d/boDv6wN

Rain Man - https://en.wikipedia.org/wiki/Rain_Man

The Essential Different, Simon Baron Cohen - https://amzn.eu/d/3Y5xgWv

Gentle Parenting - https://www.psychologytoday.com/gb/blog/on-babies/202405/gentle-parenting-doesnt-mean-permissive-parenting

Leonardo Da Vinci - https://www.independent.co.uk/news/health/leonardo-da-vinci-adhd-health-mona-lisa-a8927641.html

Social Stories - https://www.autism.org.uk/advice-and-guidance/topics/communication/communication-tools/social-stories-and-comic-strip-coversations

Supported Employment - https://www.base-uk.org/about/members/brighton-hove-city-council

Fare Share - https://fareshare.org.uk/

Oxfam - https://jobs.oxfam.org.uk/jobs/home/

Leonardslee Gardens - www.leonardsleegardens.co.uk/

CONTACT US

If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

Instagram: www.instagram.com/neuroshambles

TikTok: www.tiktok.com/@neuroshamblespod

Facebook: www.facebook.com/Neuroshambles

Threads: www.threads.net/@neuroshambles CREDITS

The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

Mark welcomes back former guest "Belle", as they discuss the perils of transport. "Belle" has two neurodivergent children - a 9-year old girl (diagnosed autistic with sensory processing disorder and a PDA profile), and a 7-year old boy (diagnosed autistic with Tourette Syndrome and suspected ADHD). Alongside Mark's three neurodivergent kids (with a giddy blend of autism, ADHD, anxiety and PDA), they have a trove of transport-related horror stories to tell.

As well as discussing tales of travelling on buses, planes, trains, boats and cars, there are also more Neurodiversity Champions, Tiny Epic Wins and What The Flip moments, as well a particularly insightful proposal to create a demand-avoidant sat nav.

LINKS TO STUFF WE MENTION IN THIS EPISODE:

Gatwick Airport Special Assistance - https://www.gatwickairport.com/passenger-guides/special-assistance.html

Ferry cabins (DFDS) - https://www.dfds.com/en-gb/passenger-ferries/onboard/newhaven-dieppe/sleeping

Jen Marillat, Dramatherapist - https://jenmarillat.com/

Health and Care Professions Council - https://www.hcpc-uk.org/

The British Association of Dramatherapists - https://www.badth.org.uk/

EMDR Therapy - https://www.bacp.co.uk/about-therapy/types-of-therapy/eye-movement-desensitisation-and-reprocessing-emdr

Riding For the Disabled Association (RDA) - https://rda.org.uk/

Aspens, East Sussex - https://www.aspens.org.uk/

CONTACT US

If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

Instagram: www.instagram.com/neuroshambles

TikTok: www.tiktok.com/@neuroshamblespod

Facebook: www.facebook.com/Neuroshambles

Threads: www.threads.net/@neuroshambles CREDITS

The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/