MyFSHD

著者： Peter L Jones PhD
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  • MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
    Peter L Jones, PhD
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あらすじ・解説

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
Peter L Jones, PhD
マネジメント マネジメント・リーダーシップ 経済学
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エピソード
  • Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 1)

    Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 1)
    2025/04/18

    "You are what you eat, and I'm freaking delicious!" Our guest to day is our First Lady (AND President) of FSHD Fitness, Nutrition, and Lifestyle, Tamara Gottlieb, who shares her years of experience helping keep her family above the FSHD curve and improve quality of life. It's a lot of work, but it can help. Part 1 of 2. Tamara is one of the leaders of the "FSHD - supplements, nutrition, and peer support" Facebook group, so check it out for more information.
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    51 分
  • FaceToned® Exercises for the Face with Carme Farré

    FaceToned® Exercises for the Face with Carme Farré
    2025/04/12

    "Come on. No, no, don't do that. Don't give me the pouty batface." We have video today (!) for our special guest Carme Farré, who founded FaceToned®, and she shares her experiences as part of an FSHD family and how her techniques for facial fitness can help the FSHD community.

    If interested, you can arrange a free consultation below:

    🔗 https://calendly.com/carmefarre/15min?month=2025-04

    and find more information:

    🌐 www.facetoned.com
    📚 courses.facetoned.com
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    1 時間 6 分
  • Brad, our angry Dad with your questions (pt 2)

    Brad, our angry Dad with your questions (pt 2)
    2025/04/03

    "Never go in against a Sicilian when death is on the line!" We have both survived so far and are back with part 2 of your Reddit questions on FSHD.
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    1 時間 5 分

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