In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares her diagnosis journey and explains why education around ME/CFS is so vital. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin explains what ME/CFS is and how it differs from other conditions with similar symptoms, like long COVID. Make sure to tune in next week for part two to hear about what’s next in ME/CFS research and the importance of care partners.

Additional Resources

#NotJustFatigue

How to Fight Fatigue

Understanding the Impact of Invisible Illnesses on Daily Life

How Families Are Leading the Charge in Rare Disease Advocacy

Other Brain & Life Podcast Episodes on Similar Topics

Rare Thoughts on a Rarer Neurologic Condition

Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare

Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth

Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by Phil Rosenthal. Phil is the award-winning creator, executive producer, and host of “Somebody Feed Phil,” as well as a two-time New York Times Best Selling Author, soon-to-be restaurant owner, and cared for his mother during her journey with Amyotrophic lateral sclerosis (ALS). Phil shares about his mother’s journey and how his family worked with doctors to prioritize her needs. Dr. Correa is also joined by Dr. Bjorn E. Oskarsson, a neurologist at Mayo Clinic in Jacksonville, Florida who specializes in ALS. Dr. Oskarsson explains ALS, how it can affect people in differing ways, and what treatment options typically look like.

Additional Resources

Max and Helen’s: A Neighborhood Diner Honoring Phil Rosenthal’s Parents

A Marathoner on a Quest to End ALS

Tips on How to Choose and Pay for In-Home Health Care

When is Palliative Care Appropriate?

Other Brain & Life Podcast Episodes on Similar Topics

Making the Years Count with Brooke Eby, Influencer Living with ALS

Finding Strength in ALS Advocacy with Podcaster Lorri Carey

Aaron Lazar on His ALS Journey and the Impossible Dream

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media: Phil Rosenthal @phil.rosenthal; Dr. Bjorn E. Oskarsson @mayoclinic.flneuro

Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, your spinal cord injury (SCI) questions are getting answered! Co-host Dr. Daniel Correa is joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein, and they discuss injury types and classification, how progress is tracked, assistive devices that can help improve daily life, how to manage the emotional toll that a SCI can take, and the importance of advocacy and making your voice heard.

Additional Resources

What is Spinal Cord Injury?

Complete vs Incomplete Spinal Cord Injury

Disability Products and Services Guide

SCI Assistive Technology

United Spinal Advocacy Program

Other Brain & Life Episodes on This Topic

“Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

• Record a voicemail at 612-928-6206
• Email us at BLpodcast@brainandlife.org

Social Media:

Guests: Dr. Shelly Hsieh @MontefioreHealthSystem

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD